It's week two of a horrible flare. You're sleep deprived and feel like a shell of your normal self. There are some things that just don't matter when you're in survival mode, but they aren't always obvious. Let's talk about what you can add and/or remove from your life so you can save your energy for things that matter — like caring for yourself and your family.
It's not uncommon to go hungry during a flare. How are you supposed to eat when your hands don't work, it takes 15 minutes for you to hobble to the kitchen, and the meal you're trying to make requires you to stand at the stove? What if you have children to feed? Here are three ways to simplify meals during a flare:
When you have the brain power, take stock of the chores you typically do in a week and consider ways to simplify or eliminate them all together.
Part of living with a chronic illness means letting go of your standards every once in a while. You know what level of mess you can and cannot tolerate for your mental health, but remember that resting and letting go of some chores is okay during a flare or difficult season of life.
One thing I dread in a flare is needing something in another room and having to muster the energy to go get it. Stations help to eliminate those kinds of tasks. Think about items you need during a flare and begin creating little "stations" around the house. These stations can be little baskets, drawers, a bag, etc. Your station can include a phone charger, medicine, heating pads, creams, and anything else you might need. For me, I'm usually posted up in my bed or on the couch, so in a flare I try to have what I need in both of these locations so I don't have to move around as much. It may take some time to buy duplicates of things, but it'll be worth it next time you flare.
There's a whole world of devices out there that were created for the niche problems you face. There are tools to help you open jars and cans, tools to help you keep balance when you're shuffling around the house, tools to help you drive when your wrist hurts — it's all out there. Cheryl from Arthritis Life is an occupational therapist and has an amazing list of tools you may find helpful. Check it out here.
Please remember — you are NOT lazy! You have a debilitating disease and simplifying your life is a kindness that you deserve. I hope these ideas help you and make your next flare easier to navigate.
Meet Ellen, a chronic illness advocate and the founder of Flare Family. Since developing Rheumatoid Arthritis in 2010, she's dedicated herself to empowering others navigating similar journeys through her TikTok account, @ellenwitharthritis. Led by compassion, she is working to build a community where everyone feels heard, understood, and uplifted.
Ellen is a graphic and web designer who enjoys spending time with her partner, Jarrod, and soul dog, Dolly. Her not so guilty pleasures are Bravo reality shows, donuts, and finding great hiking spots.
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